2019 - Present

  1. Wu J, Curtis R, Manco-Johnson M, Konkle BA, Kulkarni R, Baker J, Ullman MM, Roberts JC, Crook N, Nichol MB. Short term health state change in older persons with hemophilia from the Hematology Utilization Group Studies part VII (HUGS VII). The World Federation of Hemophilia (WFH) 2022 World Congress, Montreal, Canada May 8-11, 2022. |Link to poster

  2. Roberts JC, Kulkarni R, Kouides PA, Sidonio RF Jr., Carpenter SL, Konkle BA, Wu J, Ullman MM, Curtis R, Baker J, Crook N, Nichol MB. Depression and Anxiety in Persons with Von Willebrand Disease. 63nd American Society of Hematology Annual Meeting & Exposition December 11-14, 2021 | Link to abstract | Link to poster

  3. Curtis R, Roberts JC, Crook N, Decker-Palmer M, Khainar R, Baker J, Ullman M, Koerper MA, Wu J, Nichol MB. Trends in Prescribing Practices for Management of Hemophilia. 63nd American Society of Hematology Annual Meeting & Exposition December 11-14, 2021 | Link to abstract | Link to poster

  4. Ullman MM, Manco-Johnson MJ, Roberts JC, Crook N, Khairnar R, Decker-Palmer M, Curtis R, Baker J, Soni A, Wu J, Nichol MB. Association of Hemophilia A Inhibitor Status and Patient-Reported Outcomes with Work Productivity and Health-related Quality of Life. 63nd American Society of Hematology Annual Meeting & Exposition. December 11-14, 2021 | Link to abstract | Link to poster

  5. Lanzkron S, Crook N, Wu J, Hussain S, Curtis RG, Robertson D, Baker JR, Nugent D, Soni A, Roberts JC, Ullman MM, Nguyen A, Agodoa I, Nichol MB. Health-Related Quality of Life in Persons with Sickle Cell Disease. Virtual ISPOR 2021, May 17-2021. |Link to abstract | Link to poster

  6. Wu J, Curtis R, Ullman MM, Baker J, Tran DQ Jr, Riske B, Nichol MB. Depressive disorders among adults with hemophilia A. All-Virtual 62nd American Society of Hematology Annual Meeting & Exposition December 5-7, 2020 | Link to poster

  7. Curtis R, Manco-Johnson M, Konkle BA, Kulkarni R, Wu J, Baker J, Ullman M, Tran Jr. DQ, Nichol MB. Hematology Utilization Group Studies part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia. All-Virtual 62nd American Society of Hematology Annual Meeting & Exposition December 5-7, 2020 | Link to poster

  8. Ullman MM, Manco-Johnson MJ, Roberts JC, Crook N, Khairnar R, Wu J, Carrasco S, Curtis R, Baker J, Tran Jr. DQ, Nichol MB. Impact of Hemophilia A Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S. All-Virtual 62nd American Society of Hematology Annual Meeting & Exposition December 5-7, 2020 | Link to poster

  9. Roberts JC, Kulkarni R, Kouides PA, Sidonio Jr. RF, Carpenter SL, Konkle BA, Wu J,  Baker J, Ullman MM, Curtis R, Carrasco S, Tran Jr. DQ, Nichol MB. Healthcare Utilization and Health Related Quality of Life in Persons with von Willebrand Disease. All-Virtual 62nd American Society of Hematology Annual Meeting & Exposition December 5-7, 2020 | Link to poster

  10. Curtis R, Ding Y, Aliyev ER, Wu J, Koerper MA, Lou M, Ullman MM, Tran DQ, Baker J, Riske B, Nichol, MB. Clotting Factor Utilization and Bleeding Rates Among Persons with Hemophilia A From a Longitudinal Study. International Society for Pharmacoeconomics and Outcomes Research Annual Meeting, New Orleans, LA, May 18-22, 2019 | Link to poster

ISPOR 2019May 18-22, 2019 New Orleans, LATitle: Clotting Factor Utilization and Bleeding Rates Among Persons With Hemophilia A From a Longitudinal StudyClick here for full poster.

ISPOR 2019

May 18-22, 2019 New Orleans, LA

Title: Clotting Factor Utilization and Bleeding Rates Among Persons With Hemophilia A From a Longitudinal Study

Click here for full poster.

 

2018-2014 PRESENTATIONS

  1. Nichol MB, Curtis R, Ding YC, Aliyev ER, Koerper MA, Lou M, Ullman MM, Tran Jr DQ, Baker J, Riske B, Wu J. Impact of prophylaxis usage on bleeding rates among persons with hemophilia A: Evidence from longitudinal analyses in the USA. American Society of Hematology Annual Meeting, San Diego, CA, December 1-4, 2018

  2. Curtis R, Riske B, Baker J, Ullman M, Lou M, Xu Y, Koerper M, Nichol MB. Assessment of depressive disorders among people with hemophilia A inhibitors. World Federation of Hemophilia 2018 World Congress, Glasgow, Scotland, May 20-24, 2018

  3. Ding YC, Wu J, Low M, Riske B, Ullman M, Baker J, Curtis R, Koerper M, Su J, Nichol MB. Impact of pain on health-related quality of life in persons with hemophilia from the Hemophilia Utilization Group Studies Part VI (HUGS VI): USA Experience. World Federation of Hemophilia 2018 World Congress, Glasgow, Scotland, May 20-24, 2018

  4. Nichol MB, Ning N, Xu Y, Baker J, Curtis R, Koerper M, Lou M, Riske B, Ullman M, Wu J, Health-Related Quality of Life and Health Insurance Coverage Among Persons with Hemophilia A Inhibitors, The 59th American Society of Hematology Annual Meeting & Exposition, Atlanta, GA, December 9-12, 2017

  5. Lou M, Ullman M, Baker J, Koerper M, Riske B, Curtis R, Wu J, Nichol MB, Living with Hemophilia B: Examining Quality of Life and Associated Characteristics in the Hemophilia Utilization Group Studies (HUGS VB) Cohort, National Hemophilia Foundation 69th Annual Meeting, Chicago, IL, Aug. 24-26, 2017

  6. Curtis R, Koerper M, Riske B, Baker J, Trends in hemophilia clinician prescribing practices: 1999 and 2015, HTRS 2017 Scientific Symposium, Scottsdale, AZ, April 6-8, 2017

  7. Riske B, Koerper M, Baker JR, Ullman M, Curtis R, U.S. Hemophilia Physician Prescribing Practices: Then and Now, World Federation of Hemophilia 2016 World Congress, Orlando, FL, USA, July 24-28, 2016

  8. Lou M, Wu J, Ullman M, Baker JR, Riske B, Koerper M, Curtis R, Nichol MB, HUGS VI Group, Baseline Characteristics in Hemophilia Utilization Group Studies Part VI (HUGS VI): An Adherence Study Among Participants with Hemophilia, World Federation of Hemophilia 2016 World Congress, Orlando, FL, USA, July 24-28, 2016

  9. Wu J, Lou M, Gwadry-Sridhar F, Wasserman J, Riske B, Baker JR, Hord J, Bradisse J, Konkle BA, Kulkarni R, Ullman M, Koerper M, Curtis R, Niu X, Doctor J, Nichol MB, Comparison of Health Utilities in Persons with Hemophilia B, World Federation of Hemophilia 2016 World Congress, Orlando, FL, USA, July 24-28, 2016

  10. Lou M, Ullman M, Baker JR, Koerper M, Wu J, Riske B, Curtis R, Nichol MB, HUGS V Group, Comparison of Clinical Characteristics and Health Care Utilization Among Individuals with Hemophilia A and B in the Hemophilia Utilization Group Studies (HUGS) Cohorts, World Federation of Hemophilia 2016 World Congress, Orlando, FL, USA, July 24-28, 2016

  11. Zhou ZY, Chen CX, Nichol MB, Exploring Temporal Patterns of Clotting Factor Use and Associated Healthcare Utilization in Hemophilia, World Federation of Hemophilia 2016 World Congress, Orlando, FL, USA, July 24-28, 2016

  12. Niu X, Baker J, Riske B, Ullman M, Wu J, Lou M, Nichol MB, Clustering Health Status among Adults with Hemophilia using SF12, International Society for Pharmacoeconomics and Outcomes Research 18th Annual European Congress, Milan, Italy, Nov. 7-11, 2015

  13. Chen CX, Ullman M, Hord J, Kulkarni R, Konkle BA, Baker JR, Riske B, Koerper M, Lou M, Wu J, Nichol MB, Characteristics Associated with Annual Bleeding Frequency Among Hemophilia Patients in the United States, International Society for Pharmacoeconomics and Outcomes Research 18th Annual European Congress, Milan, Italy, Nov. 7-11, 2015

  14. Chen CX, Konkle BA, Niu X, Baker JR, Hord J, Kulkarni R, Ullman M, Wu J, Lou M, Nichol MB, Associations Between Annual Bleeding Episodes and Financial Burden of Illness Among Persons with Hemophilia A and B in the United States, National Hemophilia Foundation 67th Annual Meeting, Dallas, TX, Aug. 13-15, 2015

  15. Curtis R, Riske B, Baker JR, Ullman M, Niu X, Norton K, Koerper M, Lou M, Nichol MB, Relative health status of young adults in the Hemophilia Utilization Group Studies (HUGS), National Hemophilia Foundation 67th Annual Meeting, Dallas, TX, Aug. 13-15, 2015

  16. Chen CX, Baker JR, Konkle BA, Ullman M, Kulkarni R, Hord J, Soni A, Wu J, Lou M, Nichol MB, Burden of illness among persons with Hemophilia B: direct and indirect costs, The International Society on Thrombosis and Haemostasis 2015 Congress, Toronto, ON, Canada, June 20-25, 2015

  17. Lou M, Riske B, Wu J, Ullman M, Baker J, Koerper M, Poon JL, Niu X, Konkle B, Kulkarni R, Adkins S, Gwadry-Sridhar F, Curtis R, Parish KL, Nichol MB, Comorbidities among adults with hemophilia: hemophilia utilization group studies (HUGS V), National Hemophilia Foundation 66th Annual Meeting, Washington, DC., Sep. 18-20, 2014

  18. Niu X, Poon JL , Kulkarni R, Lou M, Baker J, Riske B, Ullman M, Curtis RG, Wu J, Koerper M, Nichol MB, Association between health status and factor consumption among persons with hemophilia b using propensity score matching, International Society for Pharmacoeconomics and Outcomes Research 19th Annual International Meeting, Montreal, QC, Canada, May 31-June 4, 2014

  19. Niu X, Lou M, Poon JL, Kulkarni R, Riske B, Ullman M, Baker J, Parish K, Hord J, Curtis RG, Wu J, Koerper M, Nichol MB, Association between Health Status and Consumption of Factor IX Concentrate among Persons with Hemophilia B Hemophilia Utilization Group Study - Part Vb (HUGS Vb), World Federation of Hemophilia 2014 World Congress, Melbourne, Australia, May 11-15, 2014

  20. Niu X, Lou M, Baker J Poon JL, Konkle BA, Ullman M, Riske B, Hord J, Kulkarni R, Curtis RG, Koerper M, Wu J, Nichol MB, Measuring work or school absence associated with administration of factor concentrate in children with hemophilia in the United States – Hemophilia Utilization Group Study Part V (HUGS V), World Federation of Hemophilia 2014 World Congress, Melbourne, Australia, May 11-15, 2014

  21. Baker JR, Ullman M, Riske B, Curtis RG, Koerper M, Lou M, Nichol MB, Embracing HUGS: The Hemophilia Utilization Group Study’s Value to 21st Century Hemophilia Researchers -- Documenting Cost, Quality and Outcomes, Thrombosis and Hemostasis Societies of North America 2014 Annual Meeting, Chicago, IL, April 10-12, 2014

2013-1994 PRESENTATIONS

  1. Niu X, Poon JL, Lou M, Ullman M, Koerper M, Baker J, Hord J, Konkle BA, Riske B, Buranahirun C, Gwadry-Sridhar F, Curtis RG, Kulkami R, Soni A, Nichol MB,  Burden of Bleeding Episodes among Persons with Hemophilia B – Hemophilia Utilization Group Study Vb (HUGS Vb), National Hemophilia Foundation 65th Annual Meeting, Anaheim, CA, Oct. 3-5, 2013

  2. Niu X, Poon JL, Riske B, Baker J, Ullman M, Gwadry-Sridhar F, Lou M, Nichol MB. Cost to Society due to Underemployment in Persons with Hemophilia B – Hemophilia Utilization Group Study Vb (HUGS Vb). ISPOR 18th Annual International Meeting, New Orleans, LA. 2013 May.

  3. Poon JL, Doctor JN, Ullman M, Riske B, Koerper M, Baker J, Gwadry-Sridhar F, Niu X, Lou M, Nichol MB. Longitudinal Changes in Health-Related Quality of Life for Chronic Diseases: An Example from the Hemophilia Utilization Group Study Part Va (HUGS Va). ISPOR 18th Annual International Meeting, New Orleans, LA. 2013 May.

  4. Niu X, Poon JL, Lou M, Kulkarni R, Baker J, Nichol MB, Curtis R, Koerper M, Riske B, Ullman M. Healthcare Utilization in Persons with Hemophilia B – Hemophilia Utilization Group Study Vb (HUGS Vb). HTRS ScienTific SympoSium, Charlotte, NC. 2013 Apr.

  5. Poon JL, Lou M, Baker J, Konkle B, Riske B, Ullman M, Niu X, Curtis R, Johnson KA, Nichol MB. Health Insurance Coverage for Persons with Hemophilia B – Hemophilia Utilization Group Study Vb (HUGS Vb). NHF’s 64th Annual Meeting, Orlando, FL. 2012 Nov

  6. Niu X, Poon JL, Lou M, Riske B, Baker J, Ullman M, Konkle B, Forsberg A, Curtis R, Johnson KA, Nichol MB. Physical Activity and Health Outcomes in Teenagers and Adults with Hemophilia B - Hemophilia Utilization Group Study Vb (HUGS Vb). NHF’s 64th Annual Meeting, Orlando, FL. 2012 Nov

  7. Johnson KA, Curtis R, Koerper M, Lou M, Poon JL, Riske B, Zhou ZY. Healthcare Utilization and Cost of Care – Insights from the Hemophilia Utilization Group Study (HUGS). World Federation of Hemophilia (WFH) 2012, 50th World Congress, Paris, France. 2012 July.

  8. Poon JL, Lou M, Zhou ZY, Riske B, Koerper M, Baker J, Johnson KA. Characterizing Excessive School and Work Absenteeism in Hemophilia A. World Federation of Hemophilia (WFH) 2012, 50th World Congress, Paris, France. 2012 July.

  9. Lou M, Poon JL, Koerper M, Riske B, Baker J, Kulkarni R. Indirect Costs Among Persons with Hemophilia B. World Federation of Hemophilia (WFH) 2012, 50th World Congress, Paris, France. 2012 July.

  10. Johnson K, Zhou ZY, Koerper M, Riske B, Baker J, Poon JL, Lou M. Burden of Illness: Direct and Indirect Costs Among Persons with Hemophilia A. BDC 2nd National Conference, Atlanta, GA. 2012 March.

  11. Poon JL, Lou M, Zhou ZY, Ullman M, Koerper M, Kulkarni R, Parish K, Johnson K. Health Literacy in Persons with Hemophilia B. BDC 2nd National Conference, Atlanta, GA. 2012 March.

  12. Poon JL, Lou M, Zhou ZY, Curtis R, Doctor J,  Gwadry-Sridhar F, Riske B, Ullman M, Baker J, Koerper M, Forsberg A, Cockrell E, Johnson K. Sociodemographics, Clinical Characteristics and Health-Related Quality of Life among People with Hemophilia A and B. NHF’s 63rd Annual Meeting, Chicago, Illinois. 2011 Nov.

  13. Poon JL, Lou M, Doctor J, Zhou ZY, Gwadry-Sridhar F, Baker J, Ullman M, Koerper M, Johnson K. The Hemophilia Utilization Group Study (HUGS-Vb): Health-related Quality of Life in Hemophilia B. ISPOR 16th Annual International Meeting, Baltimore, MD. 2011 May.

  14. Lou M, Zhou ZY, Gwadry-Sridhar F, Poon JL, Doctor J, Koerper M, Ullman M, Johnson K. Utilizing a Paper Standard Gamble Instrument to Assess Health Utility in Patients with Hemophilia B. ISPOR 16th Annual International Meeting, Baltimore, MD. 2011 May.

  15. Zhou ZY, Ullman M, Koerper M, Baker J, Smith C, Poon JL, Lou M, Johnson K. Characterizing Direct Costs Associated with Hemophilia a: a Resource-Based Cost Analysis. ISPOR 16th Annual International Meeting, Baltimore, MD. 2011 May.

  16. Lou M, Zhou ZY, Ullman M, Riske B, Forsberg A, Baker J, Gwadry-Sridhar F, Miller R, Johnson K. The Hemophilia Utilization Group Study Part Vb: Characterization of Baseline Data. NHF’s 62st Annual Meeting, New Orleans, Louisiana. 2010 Nov.

  17. Zhou ZY, Baker J, Riske B, Ullman M, Forsberg A, Gwadry-Sridhar F, Koerper M, Johnson K. Bleeding Episodes and Indirect Costs among Patients with Hemophilia A - the Hemophilia Utilization Group Study Part Va (HUGS Va). NHF’s 62st Annual Meeting, New Orleans, Louisiana. 2010 Nov.

  18. Zhou ZY, Johnson K, Riske B, Ullman M, Baker J, Koerper M, Forsberg A, Miller B, Shapiro A, Huszti H. Health Care Utilization and Cost in Persons with Factor VIII Deficiency: Results of the HUGS Va Study. ISPOR 4th Asia-Pacific Conference, Phuket, Thailand. 2010 Sep

  19. Zhou ZY, Johnson K, Koerper M, Wu J, Curtis R, Riske B, Forsberg A, Ullman M, Lou M, Parish K. Association of Self-reported Joint Pain and Motion Limitation with Clinical Range of Motion Assessment in Patients with Hemophilia A. Hemophilia 2010 World Congress, Buenos Aires, Argentina. 2010 July.

  20. Zhou ZY, Johnson K, Riske B, Ullman M, Judith Baker, Koerper M, Forsberg A, Miller B, Shapiro A, Huszti H. Health Care Utilization and Cost in Persons with Factor VIII Deficiency: Results of the HUGS Va Study. Hemophilia 2010 World Congress, Buenos Aires, Argentina. 2010 July.

  21. Riske B, Zhou ZY, Forsberg A, Gwadry-Sridhar F, Ullman M, Koerper M, Baker J, Globe D, Shapiro A, Wu J, Johnson K. Barriers to Care in Patients with Hemophilia A -the Hemophilia Utilization Group Study (HUGS-Va). 1st National Conference on Blood Disorders in Public Health, Atlanta, Georgia. 2010 Mar.

  22. Zhou ZY, Ullman M, Riske B, Forsberg A, Shapiro A, Koerper M, Johnson K. Health Care Utilization in Patients with Hemophilia A - First Year Data of HUGS-Va. 1st National Conference on Blood Disorders in Public Health, Atlanta, Georgia. 2010 Mar.

  23. ZY Zhou, J Baker, B Riske, M Ullman, A Forsberg, C Smith, R Curtis, B Miller, M Koerper; K Johnson. Burden of Illness: Bleeding Episodes and Indirect Costs among Persons with Hemophilia A: Hemophilia Utilization Group Study Part Va (HUGS Va) Presentation & poster at the National Hemophilia Foundation Convention. New Orleans, LA, 2010.

  24. Z Zhou, B Riske, J Baker, A Forsberg, M Koerper, M Lou, A Shapiro, M Ullman, K Johnson. One-year health care utilization and cost in patients with factor VII deficiency:  first year results of the HUGS V-A study. Poster at the National Hemophilia Foundation Annual Convention. San Francisco, CA. 2009.

  25. Zhou ZY, Riske B, Baker J, Forsberg A, Koerper M, Lou M,  Shapiro A, Ullman M, Johnson K. One Year Health Care Utilization and Cost in Patients with Factor VIII Deficiency:  First year Results of the HUGS Va Study. NHF’s 61st Annual Meeting, San Francisco, California. 2009 Oct.

  26. Zhou ZY, Globe D, Ullman M, Baker J, Koerper M, Gwadry-Sridhar F, Wu J, Forsberg A, Shapiro A, Trawinski B, Duncan N, Johnson KA. Health Care Utilization and Factor Cost in Hemophilia. ISPOR 14th Annual International Meeting, Orlando, Florida. 2009 May.

  27. Zhou ZY, Koerper M, Riske B, Baker J, Miller R, Ullman M, Forsberg A, Curtis R, Shapiro A, Johnson K. Healthcare Utilization in Persons with Severe Hemophilia A on Prophylactic vs. Episodic Replacement. 2009 HTRS ScienTific SympoSium, Chicago, Illinois. 2009 April.

  28. Zhou ZY, Ullman M, Koerper M, Globe D, Baker J, Miller B, Riske B, Smith C, Forsberg A, Wu J, Curtis R, Shapiro A, Johnson K. Health Insurance Coverage for Adults and Children with Hemophilia - Hemophilia Utilization Group Study (HUGS-Va). NHF’s 60th Annual Meeting, Denver, Colorado. 2008 Nov.

  29. Curtis R, Zhou ZY, Riske B, Ullman M, Koerper M, Johnson K. Hemophilia Utilization Group Study (HUGS Va): Baseline Data and Factor Utilization. WFH’s 28th World Hemophilia Congress, Istanbul, Turkey. 2008 June.

  30. Zhou ZY, Wu J, Globe D, Gwadry-Sridhar F, Riske B, Ullman M, Huszti H, Koerper M, Baker J, Johnson K. Factors Associated with Lower Health-related Quality of Life (HRQoL) in Adults with Factor VIII Deficiency - the Hemophilia Utilization Group Study-Part V (HUGS-V). ISPOR 13th Annual International Meeting, Toronto, Ontario, Canada. 2008 May.

  31. Zhou ZY, Baker J, Globe D, Riske B, Forsberg A, Wu J, Ullman M, Duncan N, Smith C, Gwadry-Sridhar F, Curtis R, Koerper M, Parish K, Johnson K. Hemophilia Utilization Group Study (HUGS V):  Summary of Baseline Data -Demographics, Clinical Characteristics, Barriers to Care, Arthropathy and Quality of Life. NHF’s 59th Annual Meeting, Orlando, Florida. 2007 Nov.

  32. Riske B, Forsberg A, Zheng-Yi Zhou, Femida Gwadry-Sridhar,  Megan Ullman,  Judith Baker,  Denise Globe, Carissa Smith,  Joanne Wu, and Kathleen Johnson. Association of Social Demographics and Clinical Factors with Barriers to Hemophilia Care in Patients with Factor VIII Deficiency-The Hemophilia Utilization Group Study-Part V. APHA 2007 Annual Meeting & Exposition, Washington, D.C. 2007 Nov.

  33. Wu J, Nichol M, Globe D, Gwadry-Sridhar F, Ullman M, Johnson K. Estimating Utility Values for Self-reported Joint Pain and Motion Limitation Outcomes in Adult Hemophilia Patients-the Hemophilia Utilization Group Study-Part V (HUGS-V). ISPOR 12th Annual International Meeting, Arlington, VA. 2007 May.

  34. Wu J, Globe D, Gwadry-Sridhar F, Forsberg A, Riske B, Johnson K. The Association of Barriers to Care and Health Related Quality of Life in Patients with Factor VIII Deficiency-the Hemophilia Utilization Group Study-Part V (HUGS-V). ISPOR 12th Annual International Meeting, Arlington, VA. 2007 May.

  35. Curtis R, Johnson KA. HUGS V: Hemophilia Costs and Impact of Disease Study. Federal Hemophilia Treatment Centers/Region IX 2007 Annual Conference, Newport Beach, California. 2007 March.

  36. Johnson K, Wu J, Globe D, Riske B, Ullman M, Curtis R, HUGS Group. Hemophilia Treatment Patterns and Baseline Data for the Hemophilia Utilization Group Study Part –V. NHF’s 58th Annual Meeting in Philadelphia, Pennsylvania. 2006 Oct.

  37. Wu J, Curtis R, Parish K, Globe D and Johnson K. The Association of Self-reported Joint Problems and Health Related Quality of Life in Patients with Factor VIII Deficiency. WFH’s 27th World Hemophilia Congress, Vancouver, Canada. 2006 May.

  38. Curtis R, Globe D, Wu J, Riske B and Johnson K. Use of an Automated Telephone Survey System to Collect Monthly Utilization and Disease Burden Data in the Hemophilia Utilization Group Study (HUGS). WFH’s 27th World Hemophilia Congress, Vancouver, Canada. 2006 May.

  39. Wu J, Globe D, Riske B, Wasserman J, Johnson KA. Risk Indicators for Self-reported Joint Pain and Motion Limitation Outcomes in Hemophilia Patients-the Hemophilia Cost and Impact of Disease Study-Part V. ISPOR 11th Annual International Meeting, Philadelphia, Pennsylvania. 2006 May.

  40. Globe D, Wu J, Curtis R and the HUGS Steering Committee. Cost Effectiveness Model of Primary Prophylaxis in Severe Hemophilia A: The Hemophilia Utilization Group Study (HUGS). XXVI International Congress of the World Federation of Hemophilia, Bangkok, Thailand. 2004 Oct.

  41. Globe D, Cunningham W, Andersen R, Curtis R, Dietrich S, Sanders N, Miller R, Parish K, Kominski G. The Hemophilia Utilization Group Study (HUGS): A Retrospective Assessment of Health Status of Persons with Haemophilia. XXIIV International Congress of the World Federation of Hemophilia, Montreal, Canada. 2000 July.

  42. Globe D, Parish K, Curtis R, Miller R, Sanders N, Dietrich S and The Hemophilia Research Society. The Hemophilia Utilization Group Study (HUGS): Physician Prescribing Practices Survey. XXIIV International Congress of the World Federation of Hemophilia, Montreal, Canada. 2000 July.

  43. Parish K, Globe D, Curtis R, Dietrich S, Koerper M, Miller R, Sanders N, Kominski G. The Hemophilia Utilization Group Study (HUGS): Psychosocial Factors in Utilization and Cost of Health Care. XXIII International Congress of the World Federation of Hemophilia, The Hague, The Netherlands. 1998 May.

  44. Curtis R, Dietrich S, Globe D, Koerper M, Miller R, Parish K, Sanders N, Kominski G. The Hemophilia Utilization Group Study HUGS): Data Collection in Diverse Environments while Maintaining Patient Confidentiality. XXIII International Congress of the World Federation of Hemophilia, The Hague, The Netherlands. 1998 May.

  45. Globe D, Cunningham W, Andersen R, Curtis R, Dietrich S, Sanders N, Miller R, Parish K, Koerper M, Kominski G. The Hemophilia Utilization Group Study (HUGS): Predictors of the Cost of Total Health Care for Individuals with Factor VIII Deficiency. XXIII International Congress of the World Federation of Hemophilia, The Hague, The Netherlands. 1998 May.

  46. Globe D, Cunningham W, Andersen R, Curtis R, Dietrich S, Sanders N, Miller R, Parish K, Koerper M, Kominski G. The Hemophilia Utilization Group Study (HUGS): Cost of Out-Patient, In-Patient and Pharmaceutical Care. XXIII International Congress of the World Federation of Hemophilia, The Hague, The Netherlands. 1998 May.

  47. Globe D, Curtis R, Miller R, Dietrich S, Sanders N, Parish K, Kominski G. The Hemophilia Utilization Group Study. XXII International Congress of the World Federation of Hemophilia, Dublin, Ireland. 1996 June.

  48. Curtis R, Dietrich S, Hutton R, Lee M, Miller R, Parish K. Determination of Utilizatin of Services in Hemophilia: A Group Study. XXI International Congress of the World Federation of Hemophilia, Mexico City, Mexico. 1994 April.